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MUSCULAR DYSTROPHY
FSH - MD Support Group
London

Grant Logan

Email : fshgroup@hotmail.com
Website : www.fsh-group.org
Telephone : 0800 652 6352 

The FSH-MD Support Group aims to improve the quality of life
for all those with FSH and those who care for them.
We offer support and encouragement to families and individuals who have FSH.

MDC - Muscular Dystrophy Campaign
London

Grant Logan

Email : info@muscular-dystrophy.org
Website : www.muscular-dystrophy.org
Telephone : 0800 652 6352

The Muscular Dystrophy Campaign is the only UK charity focusing on all muscular dystrophies and allied disorders. It has pioneered the search for treatments and cures for
over 47 years and provides practical, medical and emotional support to people affected by the conditions.


International Myotonic Dystrophy Organization
Worldwide

Grant Logan

Email : info@myotonicdystrophy.org
Website : www.myotonicdystrophy.org/

Information about Myotonic Dystrophy (DM1 and DM2) and Congenital Myotonic Dystrophy (CMD), both forms of muscular dystrophy.


Action Duchenne
London

Grant Logan

Website : www.actionduchenne.org/r-nav/1.jsp
Telephone : 0208 556 9955

Action Duchenne (Formerly PPUK) exclusively funds research for a cure and promotes campaigns for better medical care for Duchenne and Becker Muscular Dystrophy. Duchenne is so severe that young men are totally paralysed by late teens and die young from respiratory or heart failure. Your donations and support will help us end this tragic waste of young lives.

Other useful links:-
 
BBC News - Muscular Dystrophy
MD Forum
Muscular Dystrophy - An Introduction
Fighting For A Cure For Muscular Dystrophy
Muscular Dystrophy Forum
NHS Direct - Muscular Dystrophy
Muscular Dystrophy Patients United
BBC Health - Muscular Dystrophy
BBC Health - Drug "mends" Muscular Dystrophy
BBC Health - Muscular dystrophy trial to start


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